Summertime

[pnesuffer]

Here's wishing all of us a wonderful and less painful days, in the easy summertime. Hoping some of us r able to go camping or swimming or may be just able to enjoying your family. Enjoy the summer eas. Wheather it be a summer fair or one day on a boat fishing, i hope some of u r able to have one day of summer fun. Enjoying the garden, picking berries or just watching a bond fire or fireworks......something. I'm hoping some of us get one day at least of summertime, summer fun, one day of being normal, and just enjoying the simplest things in life. This is what i wish for on this summer day, just one day of summertime for all of us. Wishing u all one day of not PN, just summer..........whatever summer is to u, i wush it for u, for at least a day. enjoy


Oregon

[Karyn]

Hi Pnesufferer!
My very favorite thing about summer time is floating in the pool! It really helps to feel weightless for a while. I know we don't know eachother but I think of you every day, with your upcoming surgery. It's next week, right? How are you doing? Excited? Anxious? Nervous?
I think you're very brave and sincerely hope your surgery is a success!
Wishing you the best of the best,
Karyn

[Kathleena]

Dear PNE sufferer: Just quickly looking over your posts and see you are having surgery July 30th. I wish you the best, that all goes smoothly for you, and pain becomes a thing of the past. I have an app't with Dr. Hibner March 2nd, just a consultation. On August 12th will be my first app't with a Dr. Peng in Toronto, Canada to discess nerve blocks etc. I am so uptight about this coming app't because I'm actually afraid a nerve block will flair up the pain. After two back surgeries I don't put much faith in thinking everything will go smoothly for me. I find pne the most awful snydrome, but actually I know deep down that there are many many people worse off then me with different conditions. I'm so glad I'm not paralized!!
Had a very bad winter with pain and limitations, but after going on cymbalta have improved some. I have no idea whether to have surgery or not, but I can't imagine the rest of my life lying in bed or on the couch. The isolation has been one of the hardest things for me to bear. Even though I do have friends and family that support me. I guess after 4 years of this, and steadily getting worse (haven't driven the car, or been to a store in one year) I sometimes feel very lost. I have been crying again, not as bad as in the winter, but not as good as when I first started cymbalta. I guess it's self pity, and being tired of always being the one left home alone. I feel bad for my husband that he has to go everywhere on his own. I tell him to go, but then sometimes I get really down. I communicate with God daily, I know He knows what the purpose is for this painful trial, and I ask Him everyday for help to get through the day. In the summer it's a little better because I can get outside on a foam covered lounge chair.
I'm glad you feel confident about the upcomming surgery.
Will be checking the post to see how you do, all the best, Kathy

[GraceUnderFire]

I am so excited for you! I am keeping you in my prayers too. This summer has been a little better for me because we had to move into an apartment, but it has a pool:) Floating seems to really help me relax everything and the pain is a bit less for a while afterward.

Sending good thoughts your way!
Grace

[Kate]

Kathleena,
Just in case you have a flare after the steriod injection, make sure that you have pain meds on hand. If not, ask the doctor.

I'm not saying you will have a flare but it's always better to be safe then sorry. Go for it!
Kate

[Kathleena]

Dear Kate: I wish I had everyone's fight in me! I've seemed to have lost mine, I don't trust Doctor's who say "you might have a little flare" and then you are in more pain. I guess they don't know what the outcome would be. At this point in my journey I'm back to hiding in my bed, and trying to forget that most people are outside and enjoying a pain free day. My best friend never even gets a headache, I find that so amazing because I've had one thing after another to the point it's hard to have any hope. Can you even imagine what a day without pain would be like?? Aw, I hope it all comes to us eventually because we are the peoople who will appreciate that the most. love, Kathy

[pnesuffer]

Dearest Kathleena

I'm so sorry your so very blue, i understand, your story sounds so very similar to mine. Five years on the sofa, alone in the crowd right, left behind hurts. Sorry u r struggling so hard with this, i jnow it's so hard. Now that u have this site u r not alone, we r here and we understand. Please don't hesitate to e-mail me or call me or ask me anything, we r in this together right. I know we all have blue days, and harder days, and then worse days yet, but we also have each other who understand and that is priceless right. So please let us help u on your hard days, mail me and i'll be happy to give u my number. or whatever works for u, but please don't think your alone because there is a crowd of us. Hang in there Kathleena, look at it this way, it can only get better. And u have the Lord with u too.......thinking of u

Oregon

[Kathleena]

Hi, thank you all so much for your encouraging words and your interest in my pain. Some days are better than others, and I need to take one day at a time, and not start worrying about how I'm going to survive next winter if I can't get out of the house. After reading the posts here I was somewhat encouraged. Then I went on the other site and read the update on someone who had surgery earlier this year and find out that she has more pain then she had before her surgery. This is what scares me, I don't know if I can take the chance. Going to try and stop thinking about it non stop and try to enjoy the summer. thanks again, take care, kathy

[Violet M]

Dear Kathy,

Just wanted to let you know I will say some prayers for you that you will make the right decision. I know it's very difficult to decide whether to have surgery. I was in pretty bad shape before surgery and I'm very happy I took the chance but I know it could have turned out differently. Best wishes,

Violet